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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)
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@kjwalkercidp

Question for the group. I was diagnosed with CIDP around 6 months ago although it has taken like three years to get to a diagnosis. Lately, I've been experiencing flu like symptoms (chills and some aches) once a week or once every two weeks. It only lasts a day/overnight.

Anyone else experience this? I am wondering if it's the CIDP messing with my body's temperature regulation system somehow. I can't find anything related to it online.

Thanks, and good luck to all. Ken

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Replies to "Question for the group. I was diagnosed with CIDP around 6 months ago although it has..."
John, Volunteer Mentor | @johnbishop | Mar 15 7:56am

Welcome @kjwalkercidp, I'm hoping @sherlock and other members with CIDP can answer your question. I'm pretty sure you are not alone. I did find some others talking about frequent chills in a reference that seems to be what you mentioned.

"Since the beginning of my CIDP symptoms, I have gotten chills every now and then.[/QUOTE]. I have CIDP and cold temperatures are a problem for me. I ..."
--- GBS/CIDP Foundation International: https://forum.gbs-cidp.org/forums/topic/chills-anyone/

Have you discussed the symptoms with your doctor or neurologist?

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dlydailyhope | @dlydailyhope | Mar 16 2:15pm

I believe autonomic nerve damage impacts body temperature regulation. I have idiopathic small fiber neuropathy confirmed with punch biopsy in 2017. In addition to spinal stenosis and cervical myelopathy (had ACDF surgery), I have started to notice significant CNS/PNS decline. It is like my brain and body are not communicating properly or quickly. Everything seems to be slowing down. I can’t get in to a new neurologist until the end of April for updated EMGs (upper/lower), nerve conduction studies, and brain MRI. My symptoms seem to be pointing to MS. I have seen different rheumatologists and RA/lupus was ruled out. There are times I suddenly get really hot, sweat or very cold. I ask others around me if they are hot or cold and they aren’t experiencing the same temperature discomfort I am. Excessive heat really bothers me. How were you diagnosed with CIPD? Should I ask my neurologist about CIPD? I seem to have pain, numbness, weakness, etc. all over my body. Thanks!

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