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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)

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@johnbishop

Hi @peggyella, I think there are some members here that have had a spinal cord stimulator implanted in the last year or so. I did find some information on improvements from Dec 2017 when this article was created.

New advancements in spinal cord stimulation for chronic pain management.
-- https://www.ncbi.nlm.nih.gov/pubmed/28938297

A review of spinal cord stimulation systems for chronic pain
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4938148/

It might be worth looking into or discussing with your doctor.

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Replies to "Hi @peggyella, I think there are some members here that have had a spinal cord stimulator..."

Thank you, John. Yes, from the Cleveland Clinic article, they’ve improved a lot. I used to have to turn the level up so high that it made my legs completely unsteady so it was not profitable. The first time my mother saw me try to walk, it scared her to death! LOL. I appreciate the articles and will check it out.

I was interested in the snail venom except that when it was in my pain pump it caused audio hallucinations after a year. The music, although not recognizable, was so loud that I called my neighbor to ask if her teenagers were blasting their stereo! She said they weren’t home and she was napping. No stereo. She must’ve thought I was crazy. My doctor hesitated to believe me at first because she said she had never read anything on audio hallucinations being a side effect. It is usually visual hallucinations that are a problem. But then she checked blogs and found many comments from patients who had the same symptoms.

So I plan to contact Cleveland Clinic about whether receiving it as an injection into the spine would or would not be the same as a constant drip in a pain pump.