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@jolo24

Hello everyone. Joe from Pa here. My wife was diagnosed with pancreatic cancer in 2021. She was diagnosed after repeated trips to her primary physician who prescribed heartburn medicine. Thankfully she pushed him and finally a gastro doc recommended an MRI which discovered a tumor in the middle of her pancreas. She received surgery in Hershey, Pa where they removed her tumor, part of her pancreas, her spleen and 13 lymph nodes. Unfortunately a year later the cancer was found to have spread to other lymph nodes in an inoperable area. After several rounds of Chemo drips both before her surgery and after she has come to the point where she can no longer tolerate the drip and the FU box they sent her home with. She is now on pills from a targeted therapy still getting side effects, but tolerable so far. It's been a long road for her and being her caretaker has been challenging. She has been though a myriad of emotions from anger to tears. Fighting to quiting to fighting again. We live in a rural area of Pa between Philly and Pittsburgh and I wonder if she is receiving the best care here. She is on her 4th oncologist in the past 2 and a half years. The local cancer clinic who is caring for her here is associated with John Hopkins in Baltimore, MD who is in communication regarding her case and in agreement with her treatments. In any case so glad I found this site. Hoping to connect with others going through the same issues. We don't have family close as we are from the Philly area as I moved us out here for a job 10 years ago. Don't hear much from them. I honestly think they don't know what to say to us, so out of sight out of mind, unfortunately. We are both retired now. Thanks for reading our story.

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Replies to "Hello everyone. Joe from Pa here. My wife was diagnosed with pancreatic cancer in 2021. She..."

Hello! Welcome to the Mayo board. I also have stage 4 inoperable pancreatic adenocarcinoma. I was diagnosed in late March 2023 and staged 4/6/23. I can certainly understand all of your concerns. This disease is challenging, and fighting it is a real slog, day by day. It is difficult to keep spirits up. I'm glad your MD is in touch with the Johns Hopkins folks; that should help you get the appropriate treatment. But of course, you are always free to seek a second or third opinion elsewhere. Why did your wife change oncologists? I changed early in my treatment because my first oncologist, um, lacked bedside manner, let's say. (He was sharp and dismissive.) I also hope that you have some community support in your area and resources such as grocery delivery to help you manage everything. Please feel free to browse the board and research topics and post questions. I have found the people here to be so friendly and forthcoming, and I'm sure you will too.

Have you contacted pancan.org for options in your geographic area? I have found PanCan.org very helpful in providing information on oncologists, surgeons and clinics. University of Pennsylvania does PDAC research (for one), although I don't know how robust their Pancreatic Cancer department is for your situation. Pancan.org can provide quite a bit of information that may be of help.