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msaliceinpain (@msaliceinpain)

Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Jun 27 12:40pm | Replies (283)

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@rpennino

So sorry to hear this but for sum reason it is hard to get someone to actually write up that you have Arachnoiditis. I have had it for a long time and just found out that a mylagram test with dye will show the Arachnoiditis and you can have your primary order it. It is a 20 minute test, I have a pain pump wich they put the dye in but my pain doctor was able to see everything.

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Replies to "So sorry to hear this but for sum reason it is hard to get someone to..."

After all these years this is the 1st time I’ve heard of this. Thank you so much making people aware. My experience has been a nightmare and doctors can be very crooked. I had an early diagnosis by top doctors but other doctors thought when they made a mistake they could pull the “you don’t have the disease” card to cover up. Thank you again for your post.

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