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High risk surgery. Is it worth it?

Neuroendocrine Tumors (NETs) | Last Active: Mar 29, 2024 | Replies (40)

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@californiazebra

@ant12 Are you seeing a NETs surgeon and a NET team of doctors? So important to do that.

My next thought is about the different skill level of each surgeon. My mom's dog had a huge benign tumor on her chest. Mom's vet said he couldn't remove it due to location, the dog might bleed to death if he nicked the artery. Second opinion with my very skilled vet who said, no problem, she could remove it, but it was totally unnecessary, just unsightly. We left it with no worries.

You need a confident surgeon who has time for you and cares about you. Have you had a second opinion? You stated you are in Australia, so I don't know if any US treatment would be covered. If so, or if you just want a good second opinion and are willing to pay out of pocket if not covered, I would recommend Dr. Eric Liu MD in Denver, Colorado. His entire practice is NETs surgery. He also believes in debulking when possible.
https://www.rockymountaincancercenters.com/physicians/eric-liu
NETs surgery is his life. He has studied it in the US and abroad so he may even be able to recommend a great NETs surgeon in Australia. I've watched so many of his talks about NETs. He's such a confident surgeon and states he always thinks about what is best for the patient today and in the long run. It would be worth watching some of his recorded talks on YouTube. Prayers for you.

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Replies to "@ant12 Are you seeing a NETs surgeon and a NET team of doctors? So important to..."

Given how “Rare” Nets are there are no surgeons here who are specialists.
I have an Oncologist who is a professor Net specialist.
My surgeon isa GI specialist and the new one referred to me is a pancreatic specialist who deals in cancerous growths.
I wish I could afford to travel to the States but in reality I can’t.
I appreciate your input and will watch that video for information.