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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)

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@stoaway

Hi @johnbishop unfortunately no. I have seen so many different doctors for both my Myasthenia Gravis and the Arachnoiditis and the answer I receive from everyone is that there is no cure for either one only pain management with pain meds. To be honest I am truly tired of taking pain meds they help a little but then the body creates a tolerance to the meds and it becomes a roller coaster ride. I live in pain every day and I feel that there is no relief in sight. I am willing to go or travel anywhere where there is a doctor that can help me. I live in Miami but have been unable to find someone that can treat both disprders which is hard to believe. Do you have any recommendations?
Thank you, Mayra

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Replies to "Hi @johnbishop unfortunately no. I have seen so many different doctors for both my Myasthenia Gravis..."

Hi Mayra @stoaway, Mayo Clinic Pain Management Program may be something to look into to see if it will help. I have no medical training or background but I've heard others mention that it has been helpful. I did see that they have a handbook in PDF format that provides information about the program. Here is the link:
-- https://www.mayoclinic.org/documents/mc1459-02-pdf/doc-20078829

Mayo Clinic Jacksonville Campus does have a Pain Rehabilitation Center that may be helpful:
-- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center

John