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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)
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@johnbishop

Hello @ginpain, welcome to Mayo Clinic Connect. There several other active discussions here on Connect that may provide some information and members to connect with to share symptoms and treatments.

Groups > Autoimmune Diseases > Myasthenia gravis (MG)
-- https://connect.mayoclinic.org/discussion/myosthenia-gravis/

Groups > Autoimmune Diseases > Myasthenia Gravis and Stiff Person Syndrome
-- https://connect.mayoclinic.org/discussion/myasthenia-gravis-and-stiff-person-syndrome/

Groups > Chronic Pain > Arachnoiditis
-- https://connect.mayoclinic.org/discussion/arachnoiditis/

I tagged other members who like you @ledgerwp @asw417 @Tbato622 were looking for a doctor specializing in Arachnoiditis. @d_corley43 strongly recommends her doctor in California. You may wish to connect with them.

@stoaway, have you found any treatment that helps with the pain?

John

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stoaway | @stoaway | Jan 23, 2020

Hi @johnbishop unfortunately no. I have seen so many different doctors for both my Myasthenia Gravis and the Arachnoiditis and the answer I receive from everyone is that there is no cure for either one only pain management with pain meds. To be honest I am truly tired of taking pain meds they help a little but then the body creates a tolerance to the meds and it becomes a roller coaster ride. I live in pain every day and I feel that there is no relief in sight. I am willing to go or travel anywhere where there is a doctor that can help me. I live in Miami but have been unable to find someone that can treat both disprders which is hard to believe. Do you have any recommendations?
Thank you, Mayra

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