← Return to Metanx, Repatha, Statins and making sure doctors keep check...

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@jeffrapp

We may be getting too deep in the weeds in this discussion. However, I do think it's important for patients to be fully informed in order to make rational decisions, so here goes.
Repatha, as previously pointed out by another poster, is not a statin, so it is not a subject of the following discussion.
I looked at the FPN website. Under drugs that "may" (note their word usage) cause PN, they don't immediately list statins, but have a drop down menu which is more complete. In that list, they list statins, but the heading for that list uses the word "can" cause PN. These words have different meanings. I believe "may" is more accurate, as the whole subject is still unproven, and is likely an unusual adverse side effect if it even occurs.
My point is to not scare off people from using any drug, if the benefits outweigh the risks. In the case of PN and statins, that is a hard decision for one that already has PN, as one would likely have to depend on their own experience and beliefs rather than the research. It is likely nearly impossible (as in my case) to determine from my experience whether the PN is caused by statins, but I doubt it. Anyone near my advanced age (79) may decide that since the benefits of statins accrue at a slow pace, it may not be worth taking them. That was my decision. I think (don't quote me) that there even is a position paper by the Academy of something that statins are no longer indicated past a certain age. On the other hand, if I have a stoke before I die, I'll probably feel differently about this whole subject. I'll be sure to post, if I can still type.

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Replies to "We may be getting too deep in the weeds in this discussion. However, I do think..."

I’m 89 had heart bypass surgery 30 years ago I’ve been on statins since then my cardiologists changed me to repatha injections for the last year when my PN started it’s been about a year ago. It’s a same I’m so confused I just don’t know what’s right and what’s wrong it would be nice if we could get a definitive answer regarding PN how it starts and how u can cure it. We can fly people to the moon, do heart transplants I could go on and on but this disease or sickness baffles everyone. I belong to the Mayo Clinic group and have read so many horrible stories. Yes I am confused but I try to stay positive it’s not easy when u can’t find (someone) who has beaten this dreadful disease. My only satisfaction I’ve only had it for about a year my worst affect is my (balance) with a few other side affects that I can deal with. But I consider myself very fortunate from all the things I’ve read and people I’ve talked to , but this disease still has taken taken a toll on me because of the person I was and the person I am today. I am not a very religious man but I pray for all those who have been affected by this awful disease. GOD BLESS U ALL