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Has anyone been tested for Cystic Fibrosis since Bronchiectasis diag?

MAC & Bronchiectasis | Last Active: Mar 23 11:16am | Replies (26)
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@bateman

I was diagnosed with single gene CF ten years ago. Have had lung problems since 18, I'm 82 now on oxygen full time & low energy. Multiple other auto immune diseases. Treat one condition & that causes other problems. Excellent doctors doing their best to help.

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Replies to "I was diagnosed with single gene CF ten years ago. Have had lung problems since 18,..."
mtyler | @mtyler | Mar 19 11:11am

I have had Bronchiectasis and MAC since 2019 diagnosis and have had health issues ever since.
I was recently tested for CF and found I have elevated sweat test, and one of the variants for CF but they can't identify evidence of a second potential disease causing variant in this gene. However I have all of the symptoms of CF.
I am trying to get on trikafta as my niece's daughter has benefitted immensely from it. My insurance has denied the Trikafta as they say I don't have a diagnosis of CF. I'm 62 and trying to keep working until I"m 65.

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