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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 1 day ago | Replies (356)Comment receiving replies
Thank you for your prompt reply. I cannot take steroids orally or externally. So, if I may ask for clarification,
*do you have to do lazer treatments annually?
*or did the first treatments basically cure the LS and how many years has it been if so?
*did the lazer treatment reverse any anatomical damage? Or just stop it from
Progressing?
Thank you for answering. This is a stressful disease and I appreciate all the help I can get here.
Replies to "Thank you for your prompt reply. I cannot take steroids orally or externally. So, if I..."
Hi @hopeful333 - please read my most recent post of a few minutes ago to answer at least some of your Qs.
In my case, laser ablation was to remove precancerous skin / cells from a thin layer all around the vulva...precancerous cells arising from the lichen sclerosus (LS) condition I've had for 40+ years, but which didn't bother me until recent years.
The recovery - in my case - is going on now over 5-1/2 weeks, and I'm facing another biopsy in 4 days to further examine a troubling area. I'll leave it at that for now.
Happy to try to address other Qs if I can be of any help. I did go to cancer.org (American Cancer Society) and was able to see a post (from 2014) of a person who underwent laser ablation. Even though that was a while ago, it helped to be able to read a little from someone who experienced it firsthand.
Best wishes ...
Ask for clarification on using steroids topically where you need it for LS. Clobetasol is formulated to treat it, is a lower % strength, a cream. Not oral prednisone at all. I would push on this. Good luck! I am still asking for more info too, can take time and effort finding an MD who has the knowledge, not all do!
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The first of 3 Lazer treatments were 8 weeks apart. I have a little scarring but it's caused no issues. My treatments put my LS into remission for years. But, I had a flare-up recently and LS has spread. I hate that you can't use steroids because they squash the excessive itching.