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Conflicted/Confused, any Guidance/Advice out there?

Prostate Cancer | Last Active: Mar 31 2:33pm | Replies (72)

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@paulcalif

I'm older than you (just turned 69). My diagnosis is very similar to yours. I don't want side effects either yet I want the cancer eliminated. My doctor recommended surgery. I'm not going that route. I've spent many hours on research. My first choice was MRIdian which is radiation guided while looking at real time MRI. Unfortunately, the manufacturer went out of business but there are still some places using MRIdian. But I moved on to the "Tulsa Pro" procedure. No cutting, no radiation. This is cutting edge but not a super long track record. Check it out. There is a great video discussion on YouTube. Pretty much everything says insurance and medicare won't cover it. I did read conflicting views saying that there are temporary Medicare numbers that can be used to cover it and that it will be covered by Medicare the 1st. of Jan 2025. I don't know if any of these opinions are correct. Worst case scenario is I will pay out of pocket. The procedure runs between $30 and $40k depending on where you have it done and your particular case. I have the money in an IRA, but that's about all I have. I'm convinced that the Tulsa Pro procedure is my best choice. You have time, luckily. I'll be having a consultation with UCLA after I have an MRI done next month. Best of luck to you, do your research.

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Replies to "I'm older than you (just turned 69). My diagnosis is very similar to yours. I don't..."

UCLA has MRIdian machine. Who are you going to see at UCLA? I am going to see Dr. Amar Kishan next week.

Thanks for sharing your story, experience, and research. If I’m understanding correctly, you’re choosing to do the ablation therapy. I have looked into that myself and agree that there is not a lot of history, data, or outcomes. I just meet with a Doctor in my area who does the ablation therapy and said I was an OK candidate, not a great one.

He was incredibly honest and said he could only treat one area. He said that there would still be cancer in my prostate and thought it would be wise to stick with surgery or radiation. The sad part I’m hearing within this support group is insurance coverage. It’s bad enough we have do deal with the disease and choices, but get tagged with an enormous bill.

I wish you the very best of luck with whichever treatment you get.