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I have chronic and severe polyradiculopathy throughout the neck and in the lumbosacral region. I have moderate degenerative disease in spine and mild scoliosis in lumbar area. I have psoriatic arthritis in the sacrum. That was stable a year ago.
I need the neck evaluated. In 2004 had two bulged discs and a hemangioma of a vertebra. Im having problems there. Severe nerve damage. The lower back is causing horrible pains and spasms in the back, legs and soles of feet. I have not been living these last few years. I have a neurologist appointment for reevaluation next week and a neuromuscular neurologist in early June for another evaluation looking for a diagnosis to get real help. I had two abnormal EMGS.
I just had an epidural on the 7th. Did not help much. In fact having an intense tingling down back, legs and feet. It is waking me up. Not sure if i should call pain management.
The neck caused a lot of symptoms over the last year. The back has been progressing since the start in 2021. My problem is I only complained pretty much to the doctor when it was excruciating. I should have been talking to them a lot sooner. I might not have suffered as much as I have. I am now going to a good nm doctor and hope she can help me.
I think I might need another epidural or something else because when she gave the shot it triggered the intense tinging in the same manner I get them mostly when I’m sleeping for hours. It starts in the lumbar area and works its way down.
Please have hope. We all need to hold onto that. When I feel it slipping I use that at times to stir up fight enough in me to keep pursuing help. Im thinking whatever I have there isn’t a cure. Just these ‘darts’ that are thrown at it to try to do something to relieve the pain and symptom. The underlying problem is there and not going anywhere. It’s progressing. I had a flare that kicked up early February.
Seek answers and ask more pointed, intrinsic questions. I have learned more about the anatomy to point to the pain I’m having. That can be a bit much. Trying to understand what is darn complicated. So, hopefully these doctors can figure it out. I have confidence that while one doctor might not take care of me, the other one will. I need to have that hope. I told my pcp yesterday that I’m losing hope that this will be forever. When he left the room he said, You will feel better, I don’t know when, But you will feel better. I think he was trying to help me better cope by hope. I like that: “Cope by Hope”. So we all need to do that a bit more. It makes me feel better mentally when I have hope.
I hope you get answers that are not as worrisome as you think it might be!
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Replies to "I have chronic and severe polyradiculopathy throughout the neck and in the lumbosacral region. I have..."
I say keep trying different in doctors. Im Houston and there are a lot of them. I have been to 4 and the injections in my neck helped. My back has been anywhere from nothing to had relief for a year.. My sleeping is a big problem. I invested in a very expensive bed to see if that will help. So many people have this problem. There are 5 in my family who are suffering. It is probably our lifestyle. We are all very swayback too. All of us kids did a lot of heavy work and you just don't realize what this does to the body until it is too late.
I've had more epidurals than I can remember. None have helped with my lower back pain. I guess some peole get some temporary relief, but not me.
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Thank you @nemo1. I believe we have communicated in the past with respect to a CIDP diagnosis.
I never in a million years would have associated this with my CIDP as in the past it seemed more a loss of motor function-a sudden inability to use a muscle group. That is not the case here. It just seems more likely to fall into the degenerative scoliosis department, given my spinal issues. My ortho is well aware of the CIDP diagnosis and my neurologist knows of my surgical history. In fact, my neurologist refused to do my annual EEG testing knowing I had severe cervical nerve compression until I had the surgery done. My impression is that the "poly" portion of polyradiculopathy has nothing to do with radiculopathy from spine disease and only with the demyelinating source of nerve damage. Maybe we could take this portion of the conversation outside of this one? Thank you for your comments.