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Lichen Sclerosus: Any other women dealing with this disease?

Autoimmune Diseases | Last Active: 5 days ago | Replies (289)
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@hopeful333

I have been recently diagnosed with LS. One big problem…. I can’t take steroids. Did the laser work?

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Replies to "I have been recently diagnosed with LS. One big problem…. I can’t take steroids. Did the..."
Kitten92 | @kitten92 | Mar 14 5:30am

Yes lazer treatments worked. And steroid treatments aren't taken orally. It's a cream and it helps so much.

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2thfairy | @2thfairy | Mar 25 11:06am

Kitten, laser treatments from Coyle Institute in Pensacola, FL work for me for about 2 1/2 to 3 years. Then I have another treatment done. (Tulip Procedure.) He made my vulva and clitoris look normal again without taking away any sensation. It just takes a few days of healing, then I fly back home to AZ.

Dr Coyle was ill, so I recently tried another “reputable” specialist in Phoenix who did a laser procedure, with zero results. LS was back in full force after 3 weeks, and he didn’t take away any scar tissue.
I’ll be going back to Dr Coyle.
I do hope you are able to find some relief. Aquaphor will at least keep the area moist and pain away when urine hits open cuts in the tissue. Use it all the time if you can’t use steroid ointment.
Yours in sisterhood,

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