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Multiple Strange and New symptoms after Covid

Post-COVID Recovery & COVID-19 | Last Active: Apr 1 5:53pm | Replies (54)
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@joanland

Please do check out the post-viral-infection syndrome website at

http://www.solvecfs.org

This is the US nexus for research into infections like long-COVID; CFS stands for Chronic Fatigue Syndrome, and you'll also see ME which stands for Myalgic encephalomyelitis, the term used in the UK for this type of syndrome.
Solvecfs is also looking for patients to add to its data base. It involves filling out some forms and symptom tracking, and also requires signing away some rights to privacy, but the effort is so valuable I was willing to sign.

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Replies to "Please do check out the post-viral-infection syndrome website at www.solvecfs.org This is the US nexus for..."
jmac84 | @jmac84 | Mar 14 6:18am

Thanks for sharing this! I will look into this!

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goldenbo | @goldenbo | Mar 15 5:57pm

I've been participating in their study and signed up for more. So far, it's more about symptoms than treatment but I know they're trying to make that change.

ME/CFS has very specific criteria. I meet the criteria, but the docs don't seem to want to put it down. I'm sure there's a reason but don't know what that reason could be.

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