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Sensory Ganglionopathy help!!

Neuropathy | Last Active: Mar 15 10:53am | Replies (14)

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@leslie04

Thank you so much. It’s been a hard struggle for me. I would love to read some of the research you have found. And we will now be the best of ganglionopathy friends.

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Replies to "Thank you so much. It’s been a hard struggle for me. I would love to read..."

Hi Leslie,

Glad to share references. What questions are you asking about SG? That will help me narrow down the search. There are very few articles on many different aspects of the disorder. So, for me, I search SG and Sjogren’s Syndrome because I have an autoantibody for SjS. You may have no interest in that. Rather,you might be looking for something else like..LMK.

I hate that we share this diagnosis. A little over a month ago, I was a fully functional, working person. Now, I’m, well, disabled. But working on PT exercises to improve balance. I walk—like a farmer (wide-based gait). lol. Gotta laugh. Humor is the elixir. 😊 Do you get PT?

Okay, here’s an experience only someone with sensory loss could appreciate. Was getting my blood drawn, and the phlebotomist looked at me oddly and said, “that’s my foot.” Without feeling a thing, I had been tapping her foot with mine. She thought I was playing footsie with her. I explained about my neuropathy, and we both laughed. Crazy.