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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Nov 30 4:16pm | Replies (326)

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@ledgerwp

I've had arachnoiditis since 2012. It has been a tough fight and doctors that have any idea how to help are almost impossible to find. I finally found a doctor that wasn't just saying they knew what the disease was. He actually does. He implanted a pain stimulator which is helping quite a bit. He's in Tennessee so not real close to your location. Do not let a bad doctor implant a pain pump. They are only making money off of you and not trying to help That isn't for our disease. I hope that helps.

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Replies to "I've had arachnoiditis since 2012. It has been a tough fight and doctors that have any..."

Hi Pam,
thanks for adding your picture to this post. Might I suggest uploading the picture as your profile image. Here's how:
1. Click your @username @ledgerwp. This will take you to your profile page.
2. Click Edit.
3. Click Change Photo.
4. Choose your photo file.
5. Save Picture.
6. Close X the pop-up.

PS: Great info about the pain pump. I'm glad it is working for you.

What pain med does give us some relief? I'm in a wheelchair now, cannot walk because pain is so severe. What can relieve this pain?