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Sensory Ganglionopathy help!!

Neuropathy | Last Active: Aug 15 5:06pm | Replies (24)
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@ratmum

Hi Langloism,

Just diagnosed with sensory ganglionopathy. Please see my response to Leslie for details.

That’s a lot of gabapentin you’re on. I was on 300mg a day and cut down to 200mg because it spaced me out. I may just be hypersensitive.

Not sure if you updated the forum re: IVIG. I hope it worked for you. Do you know what’s causing the SG? Autoimmune disease?

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Replies to "Hi Langloism, Just diagnosed with sensory ganglionopathy. Please see my response to Leslie for details. That’s..."
John, Volunteer Mentor | @johnbishop | Mar 13 1:23pm

Welcome @ratmum, I'm happy to see that you have already connected with @langloism and @leslie04. Hopefully other members with some experience with sensory ganglionopathy will join the discussion.

You mentioned that you are also a science geek who loves to research the scant medical literature on the rare condition. One of my favorite search tools for finding medical research information is Google Scholar - https://scholar.google.com/. Have you used Google Scholar before?

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