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Oral Lichen Planus-need specialist
Autoimmune Diseases | Last Active: Mar 16 4:07pm | Replies (6)Comment receiving replies
@mjq Oh, I’m so sorry about the oral lichen planus. I’m not sure about a specialist at Mayo Clinic and Mayo can be difficult to get in to. There are two organizations that should be able to help you find a specialist in your area:
GARD the Genetic and Rare Disease organization
https://rarediseases.info.nih.gov/
NORD, National Organization for Rare Diseases
https://rarediseases.org/
Here is a discussion with some answers to your question:
https://connect.mayoclinic.org/discussion/desperately-seeking-a-specialist-for-my-oral-lichen-planus/
Can you tell me a little more about your disease? How long you’ve had it and who diagnosed it. Were you given any treatment options?
Replies to "@mjq Oh, I’m so sorry about the oral lichen planus. I’m not sure about a specialist..."
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It started about a year ago with one or two sore that would heal within a week. In Dec. 2022 it became more full blown. My dentist and an ENT diagnosed it. I will have a biopsy next week. Was given 2 rounds of oral steroids and a steroid paste which calmed it down but it did not disappear