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DEXA Scan Discrepancies: Spine improvement and hip worsened
Osteoporosis & Bone Health | Last Active: Mar 14 11:56am | Replies (24)Comment receiving replies
Hi windyshores!
Yes, all this quite correct for folks who do not have other autoimmune conditions.
My various lung problems cause some complications on the usual process.
I have gad a total of 3 Prolia shots. My infection rate increased one month after my first shot. To date, I have had 7 infections since commencing Prolua. Even with my severe asthma, bronchiatesis, and tracheobronchomalasia (sp), this rate of infection is too high, and is escalating.
Also, my osteoporosis seems due to high prednisone treatment, for the lungs and arthritis.
It is my Rheumatologist's recommendation to discontinue Prolia and go to Forteo.
The main concern is to get away from the bisphosphonates and their decrease in the immune system (mine has been in the basement most of my life) asthma starting at 2 years of age, and rheumatoid arthritis at 23.
So, in the midst of this pickle, the priority us protecting the lungs. (Pulmonary function drops with every infection)... and lungs are necessary for life! I have lost significant function since the Prolia, due to infections.
Bottom line, there is no perfect answer for this situation.
I do appreciate the soundness of your statements, for most people.
Thanks for replying.
I so appreciate all the support!
Replies to "Hi windyshores! Yes, all this quite correct for folks who do not have other autoimmune conditions...."
One distinction that may be important here is that Prolia is not a bisphosphonate. Therefore Prolia may have immune system consequences that bisphosphonates would not have. That may be of use in charting your course forward.
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I also have an autoimmune disorder. Can you share information on the effect of bisphosphonates on the immune system? I have not been told that. I have been told that Prolia affects the immune system and I have read that Evenity affects B cell production. My docs won't prescribe Prolia for me as a result. My doc would not prescribe Reclast during my cancer treatment due to afib, which is what got me in this mess with bones.
If you were on Prolia for that short a time, Forteo should be fine, according to those sources. In a way, it is fortunate that you are getting off! I am sorry for your experience. It makes me glad my doctors have spared me and I hope this next step is better for you!