Yesterday I had a 3 month follow up scheduled to see the NET specialist in St. Louis Mo.
Had blood work and scan done prior to the visit. Then a meeting with his nurse practitioner instead of him. I was told the tumor was stable and has not grown. Though the first report had it measured at 1.8cm and the newest report showed 1.9. This was explained as that is because it was measured by different people . 3 months past the surgeon talked of doing the Whipple Procedure only. After talking to the surgeon I learned of Enucleation and contacted her back asking why that had not been mentioned . She wrote back saying the tumor was too close to the duct. I mentioned this to the nurse practitioner and he told me no surgeon does the Enucleation Procedure here.
The plan going forward is to continue wait and watch. I am scheduled to repeat the scan and consultation in 6 months.
I collected all my scans and reports and mailed them off this morning for a second opinion from surgeons and PNET specialist at MAYO.
Just trying to cover all the bases .