← Return to Do you fit this paradigm?

Discussion

Do you fit this paradigm?

Post-COVID Recovery & COVID-19 | Last Active: May 14 10:03am | Replies (78)

Comment receiving replies
@meljocox

I was in my best shape and best life before getting Covid Dec 2020. Never had a vaccine before or since.

I did have psoriatic arthritis and had JUST gotten relief from my 10+ yrs of arthritis pain after starting Humira.
Gods funny humor showed me to be careful with my words because before Covid I had exclaimed how amazing it felt to NOT live in pain and how I NEVER want to live like that again……
I was pretty sick for about 3 weeks with a different symptom every day. Never bad enough to be in a hospital but I was quarantined with my young son and did ok… just sick and tired and struggling to pull myself up each day to not let him be afraid.
It took me 3 months to “feel normal again”. I had lifted weights for 30yrs at this point, even did what you would consider powerlifting but never competed. I was healthy, lean, strong, and full of happiness and energy…. Until then. Once I recovered it was like I didn’t skip a beat in the gym. I had all my normal workouts back on track and felt amazing.
Three months later I started getting a wide array of weird symptoms from heart palpitations, fatigue, insomnia, anxiety, extreme muscle pain and a continuous decline in muscle strength and endurance. Week after week the pain was more severe the weakness more pronounced. My GI symptoms that I always had were exacerbated and over the last 3 years have progressed beyond compare. A daily eye twitch for probably 6 months, almost daily cramps in my legs, tiny spasms under my skin down my legs, and fingers cramping.
Numbness in extremities, horrible brain fog and what was almost like memory loss? It was like I was busy all day but accomplished nothing and couldn’t explain how… like walking in circles trying to get things done. Like maybe In slow motion?!

I saw every kind of specialist for next 6 mos trying to get answers. Gastroenterologist, neurologist, cardiologist, psychologist, psychiatrist, endocrinologist..,. Finally after the psychologist referred me to psychiatrist and I was diagnosed with ADHD, the cardiologist diagnosed me with two types of heart palpitations that he couldn’t help with, the endocrinologist diagnosed me with Long Covid, but said they’re isn’t much we know or can do and we don’t know if it will come and go or come and stay…. I was on a path of discovery and recovery…
3 years later the neurologist said he can’t help me, my original rheumatologist diagnosed me recently with fibromyalgia, and my gi dr after 3 years of tests, scans and 4 different medications finally prescribed me something to help with my pain and symptoms.
I use to take allergy meds before taking humira for arthritis in 2020… now I take a handful of med for all the ailments. For nerve pain, for insomnia, for brain fog/adhd, for stomach, for a viral infection that apparently Covid brought out of hiding, muscle cramps, and I’m sure other stuff.
Someone above mentioned PEM (post exertional malaise) that is associated with CFS but now also Long Covid.
I’ve been doing research with some holistic medicine drs and some wellness drs who think it’s some mitochondrial function problem. Whether Covid triggered it or it’s secondary to whatever else we are trying to find a way to test for it and do some treatments based on that.
I’ve not ever been much of a crier or had depression in my lifetime… but these last 3 years have ran me into the ground. Depression from not knowing what was wrong with me depression from no one being willing to help me even if just to treat my symptoms (finally my rheumatologist seems to be the only one willing to help). Depression from accepting this new way of life as my new normal and not being able to do anything physically for 3yrs. Accepting this new body that hurts now almost every day. Sleeping days away at times when before I couldn’t understand how people even took a mid day nap?! What is that? Now I know all too well.
I feel like if I accept this body then I accept the decline of it even faster. I always lived my life to know that because I was so healthy “I could get through anything being one step ahead and defying old age”…. Now my parents who are 25yrs older than me are probably healthier than I am and they are in their 70’s. To their defense they work out every day too. That’s where I got it from.
I am starting cryogenic chamber sessions tomorrow, I am going to try to add testosterone (being a woman in my late 40’s this will be the tiniest amount) and peptides into my regimen in the next week or two and my sweet husband has been doing deep tissue messages about 2-3 days a week for a couple weeks now…. With the goals of treating my body in every way possible from a cellular level to heal and build from the inside…. I can’t let the lack of information limit me from trying to survive and recover… I will desperately seek anything in any form to find a way to live life again..

Jump to this post


Replies to "I was in my best shape and best life before getting Covid Dec 2020. Never had..."

Oh wow! I’m so glad you have the support from your family.
I’m so sorry you’re going through all of that. The depression is debilitating. I’m thankful you shared your story as you did.
It seems there are way more beautiful individuals willing to listen & offer experience, strength, & hope than I realized. Thank you to all of you. God bless us all

We are very similar in our journey. Like you, I’m still exploring and not giving up. The difference is that I am your parent’s age! Would love to compare notes.

I am in the same exact boat as you.I have gone to every specialists you can imagine the last 2 1/2 years and not one of them knows what is wrong.I went from a healthy person in my 40's exercising all the time to a basically disabled person.I am unable to work and had to move into my parents house.I feel the same as you with your parents being in better shape.Both of mine are running around and living life while I am in worse shape than a 100 year old.Honestly some 100 Olds might be in better shape than me right now.I can barely walk along with about 100 other symptoms.I never drank,smoked,or did drugs.It does not even feel real.I feel like everyone that got long covid were really healthy people who exercised all the time.Maybe we make better hosts for the virus.The worse part is them not being able to find anything.Long Covid seems to mimic alot or diseases,but when they run tests they come back negative because it is not the actual disease.I thought I had Myasthenia Gravis because of my trouble walking,loss of strength in my face and slow talking,chewing and swallowing,but my tests came back negative.I wish they had Long Covid Clinics that had Doctors that had Long Covid themselves.No one understands unless you are going through it yourself.It is a living Hell.