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When to get second opinion-recurrence possible?

Thyroid Cancer | Last Active: Mar 30 10:02pm | Replies (7)
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@rion

Thanks for your reply @koh ! I've been a little wigged out for sure. The Endo wants both with dye, and without. I am stating a new PCP next week (haven't had one in years - just Endocrinology) and he may look at my reports and help me navigate. Glad I decided to join this forum, because this stuff is always frustrating and stressful when it rears its ugly head. As much as I hate to do it, I plan to transition to another Endocrinolgist soon. There have been several red flags with my current one over the last year. Best of luck to you and I'll be checking back in soon.

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Replies to "Thanks for your reply @koh ! I've been a little wigged out for sure. The Endo..."
Lynne Marie | @lbrockme | Mar 17 5:02pm

I have had follicular ( Huertyle cell) as well.
My endo never did a biopsy in any of times I had a recurrence.
He felt that it was not a reliable indicator for the follicular carcinoma and that other factors would determine the need for treatment. I also have kidney cancer. I have had many CTs and MRIs that are without contrast and with contrast. They are usually done all at once... at least in my experience. They start an I.V. then they scan without the contrast , then administer the contrast and scan again. It doubles the time for me in mri's , especially as I have had a spread to my brain early on.
The different perspectives they get with and without contrast are helpful. Lots of advancement and knowledge grown in the 30 plus years since my first diagnosis .

I'm wondering. . . Did you ask your endo why he didn't want to do the biopsy ?
Or why he wanted both scans?

I have had to learn to ask those questions, to show them I want to understand as much as possible their thought process. I also try very hard to be respectful and not challenge them, but just try to understand to be part of the decisions. It also reduced my stress and concerns afterwards .

If you didn't ask him those questions, perhaps you could still do so ? Phone call? email?

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