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Do you fit this paradigm?

Post-COVID Recovery & COVID-19 | Last Active: May 14 10:03am | Replies (78)

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@barbarabell

You aren’t crazy. I can’t speak to cysts and lesions but I went through a phase with mouth sores and burning mouth syndrome. I no longer have either (so it could be a phase for you…don’t lose hope). My understanding is that inflammation is a hallmark of LC…many scientists believe inflammation in the brain is associated with brain fog and the terrible fatigue. I also had a phase where I was in bed a lot and could not get up in the morning. I’m not having that right now, so, again, don’t give up. Still have fatigue and brain fog, but not as severe. Yesterday, I fertilized my lawn and today I feel ok instead of being in bed. I don’t freeze in the middle of sentences as much anymore. I might be getting better but I don’t know. Nobody knows what the end game is here. I’ve got over 3 years of LC and, truth be told, eight months ago, I thought I would be completely disabled by now. I’m not. Keep hope! I am currently enrolled in the RECOVER Paxlovid study (if it ever starts!) so I’m hopeful about that, too. I can sense your depression, too. Boy, have I been there. I don’t have that right now, either. It got better. Keep hope and don’t EVER let a doctor gaslight you. If doctors aren’t knowledgeable about LC or treat you dismissively, walk out and find the one who are. I’m so happy you have an LC clinic appointment!

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Replies to "You aren’t crazy. I can’t speak to cysts and lesions but I went through a phase..."

Thank you for your encouraging words. I appreciate you for taking the time. I, too, get mouth sores. I, also have black lesions on inside of bottom lip that I acquired in 08/2022 & have never gone away. The brain fog, memory issues, RLS, HBP, are constant, as well. However, I do have hope. And I am thanking from the bottom of my heart.