Connect
← Return to Anyone dealing with Atypical Ductal Hyperplasia (ADH)?
Discussion
Anyone dealing with Atypical Ductal Hyperplasia (ADH)?
Breast Cancer | Last Active: Jul 19 1:50pm | Replies (255)Comment receiving replies
Hi: I had something similar. Mine was years of calcium calcification's on the Screening Mammo, then having to go back for a Diagnostic Mammo on the one breast. Last year had a Stereotactic Biopsy where 11 samples were taken. Came back ADH. A year later (this year,) I had an MRI and nothing showed up. Breast Surgeon still wants to do an excision. Having a 3D Mammo Cad tomorrow. If that is ok, I think I will cancel the Excision surgery.
Surprised knowone on this thread has mentioned the brutality of these breast Excisions/lumpectomies. It is shocking to me, at this point we haven't come closer to MIS (Laparoscopy etc.) for just simple verification of cancer. It all seems very extreme to me. It is the same surgery as a person I know that had a cancerous lump removed. I spoke to one Breast doctor who also uses a Robot in other surgery and she agreed with me. She said the problem lays with the FDA and that it has not been approved as "standard of care," treatment. So if she did it, and something happened....she would have difficulty with her Mal-practice insurance. As far as I'm concerned, it should be a half inch incision. Come on FDA. Some trials are completed and great success with MIS's, so lets move along.
I realize many of you on this forum ended up getting cancer and went on to much more extensive surgery. I would and did do the same with all my female plumbing, with a cancer diagnosis. But, hundreds of thousands of women get the ADH diagnosis and DO NOT end up with cancer. It is invasive surgery and it does carry risk. Requires recovery and possibility of infection.
I wish there was push back from the Breast Cancer Organizations and Doctors, to make the need for further surgical excision, less invasive.
Replies to "Hi: I had something similar. Mine was years of calcium calcification's on the Screening Mammo, then..."
Thank you for your comment. It's easy to spiral after an ADH diagnosis and a good reminder that many many women don't end up with cancer. I'm personally opting for preventive screenings and may see another breast specialist to assess risks and get a second opinion. The medical community and organizations have good intentions but sometimes they seem to suck you into their system of overtreatment and don't offer realistic information about/minimize excisional surgeries. When the health care orgs do their part, they save lives, but ADH requires a nuanced risk-benefit analysis and more needs to be done to really educate the patient and avoid using a sledgehammer to crack a nut.
@kingmullen1 This is a follow-up to my 2024 comments.
I had my best Mammogram, and Doctor breast exam, I've had in the past 10 years. Nothing showed up. Not a clarification, not anything.
Not sure if what I have been doing with my health has made a difference. My doctor seems to think so.
What I changed: I have lost weight. About 35 lbs over 2 years. Slowly and have kept it off. I exercise daily. Even if it's a short walk. I always try to move. We cut out seed oils completely. If I get exposed to seed oils while eating out, (which we don't do often,) I take a Vit E.
Once a week, I apply DIM cream to both breasts. I upped my Vit D and brought my levels in the normal range. I began adding a minimum amount of Aspirin powder to my protein/collagen drink, a couple times a week, along with Kakadu Plum and African Mango.
I became very conscience of my protein intake and realized I needed to up my protein and lower my carbs. I still very much eat complex carbs, but have really gotten away from desserts. They are more of a once in awhile treat. I still drink occasionally. Maybe a couple glasses of wine a week, or a beer I tend to stay away from the sugary cocktails. I never was a big drinker, but found liquor contends alot of calories, so I try to watch that.
I might add, all these changes, have been very beneficial to my blood work as well. Excellent A1C, glucose, thyroid and lowest heart numbers (LDL, HDL,) also in 10 years. My Doctor was really pleased about that.
Thought I would post an update. I am now as of this year, back to once a year Mammogram, unless I notice something, I am suppose to come in. I still shower breast check weekly. But, I never did ever have a lump, only the calcification and the ADH biopsy. I still do it.
Blessing to all those out there, continue the fight. Don't let the Cancer bastard destroy us.
Connect
I agree. It seems we haven't made much progress in the field of cancer, breast cancer specifically. It's still the same old thing! If they can discover a COVID-19 vaccine within a year, they should be able to come up with better cures for cancer.