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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Nov 30 4:16pm | Replies (326)
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@Tbato622

Hello. Thank u for ur email. I had an intramedullary spinal cord tumor. It was respected in 2009. It was at level C7-T3. I have severe neurological deficits n now also have arachnoiditis. I am a patient of Dr. Lubenow at Rush in Chicago. I have an intrathecal pump implanted w/morphine, bupivacaine, n clonidin. I have severe neuropathy everywhere except my hands arms n head. I live a miserable life. Any help, info, or support group would be appreciated Thank You very much!!<br />
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Replies to "Hello. Thank u for ur email. I had an intramedullary spinal cord tumor. It was respected..."
sarsarson | @sarsarson | Jul 25, 2022

Hi

I am new to this forum, also in Chicago and considering asking for a consult at Rush. I’m currently All of my care at Shirley Ryan AbilityLab with Pain Management Program. I feel I have outgrown my doctor but don’t want to take a leap without a lot of thought. Are you still at Rush?

Also you may want to know about the Chicago a chronic Pain Mutual Support Group. I am a co-facilitator and would be happy to share more info with you.

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