@hopeful33250. She was born with a Giant Omphalocele and a PDA. Closure at 6/mo. and piece put in her heart at age 7. She has been to numerous doctors since for GI issues and heart follow up. She just had a cardiac MRI which showed Atrial Septal Defect (ASD) as well. She was hospitalized on Jan. 6th for sever stomach pains (level 9 pain) and vomiting. We thought she had a blockage. She had a CT scan and that is where it all began. Her cardiologist scheduled an appointment with us this Friday to go over the IVC. Her liver Dr. is awful and will not address any questions over the phone. Looking to get discharged so we can find another doctor that will respond to questions and not make you wait months out. She isn't currently on any medication since we don't know all the answers. I just ordered her compression socks and leggings to avoid a possible DVT (but doing all this from our own research). All doctor's say is her case is very complex, but not giving us any guidance or answers. It's frightening and frustrating.