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← Return to aspergillus fumigatus
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MAC & Bronchiectasis | Last Active: Mar 14 10:55am | Replies (11)
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Irene and Rick, how did your doctor decide that it had to be treated? What were your symptoms? And Irene, after it was discovered in 2022 did you start the treatment right away and continue until now or the doctor waited? There are so many questions. I just returned from a longer walk- the weather is so beautiful today here around Chicago- and my energy is zero. Thank you
Replies to "Irene and Rick, how did your doctor decide that it had to be treated? What were..."
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For me, it started as what we thought was a cough from a re-occurrence of mac and restarted the big 3. Then a 3 day bout of Hemoptysis followed by another 3 day bout of Hemoptysis. Tests for mac kept coming back negative but aspergillus started to show. I had a pet scan and a super dimension bronchoscopy that ruled out everything but aspergillus. Then debris/fungal ball has developed but controlled by vfend for 15 months so far. Once aspergillus was detected, I took myself off symbicort as njh had already added Spiriva and this seemed to be the move that made the biggest improvement. Other than the lung & stamina, I'm in pretty good shape as I have been tested head to toe almost yearly.