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Polymyalgia Rheumatica (PMR) | Last Active: Mar 13 6:24pm | Replies (63)

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@emo

It seems like the chorus has all chimed in about the importance of a rheumatologist. I really hope you’re able to find someone. I know it’s usually a long wait, but they’re so much better positioned to help with the how it all fits together. Maybe you can see them once and after that if you need follow-up, you can do telehealth?

It can be dangerous or at least risky treating PMR without a specialist because of the symptoms, side effects to prednisone, etc.

It’s pretty common for people with PMR to need to supplement calcium and vitamin D, and/or start a medication preventatively for bone loss. My dad didn’t have osteoporosis, but because of his age, his rheumatologist started him on Fosomax as others have mentioned.

It may be worth asking your primary about that too if you’re not already covered by your treatment for osteoporosis.

Wishing you all the best.

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Replies to "It seems like the chorus has all chimed in about the importance of a rheumatologist. I..."

Thank you. My Dr did put in a referral so now I just wait for an opening. I am taking the Evenity shot once a month because I have been diagnosed with severe osteoporosis. That’s why I am trying to taper so quickly. I need to get off the prednisone as soon as possible.