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Tired of the gaslighting

Autoimmune Diseases | Last Active: Apr 30 10:33pm | Replies (189)

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@marye2

I have MCTD, an overlap disease. I end up chasing the symptoms rather than the diagnosis.

I use the Systane ointment at night and a eyemask at night helps a lot. I have a cpap machine and so the eye mask doesn't really help. Xiidra was prescribed, but it really stings, so I use it at night along with another drop of Systane. Husband has Refresh. Foggy and dry eyes are also affected by general hydration--still lots of days my mind tells me I am sleepy due to the blurr.

The Oral B Dry Mouth is good for about 3-4 hours. But, I have the gum and hard candies in my purse. I brush 2X day with electric toothbrush: my teeth were cracking and gums were acting up until I started doing this.

TMJ stretches: https://www.youtube.com/watch?v=Vrz25x3qnTY Cool Pack or heat helps and I massage the cheeks to keep the salivary glands/eustachian tubes clear--lemon drops help keep them all functioning. If you are ever in severe pain, get to the PCP as infections are a horrid experience. Take care.

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Replies to "I have MCTD, an overlap disease. I end up chasing the symptoms rather than the diagnosis...."

Thanks again for suggestions.
I use Xylimelts dry mouth stick on melts for night-time dryness. They get me through the night. If you have not tried already, you might find them more lasting.

Yes, oral hygiene is so important when dealing with this dryness.
Good luck to you❤️