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Leqembi: Anyone else taking this infusion to slow dementia?
Caregivers: Dementia | Last Active: 23 hours ago | Replies (145)Comment receiving replies
I found Connect through the Mayo Website.
The first infusion he had every bad reaction possible, but he wanted to continue and the doctors agreed. He is doing much better with the side effects, he just gets extremely cold afterwards. Before the infusion he is given Tylenol and Claritin and that has helped control most side effects as well as slowing down the rate at which the medicine goes into his body. We don't expect to see memory improvement, just trying to slow things down as much as possible.
Replies to "I found Connect through the Mayo Website. The first infusion he had every bad reaction possible,..."
Hiw has the cold been. My husband couldn't walk he was shivering so bad.
@badlandsgirl
Hi my wife has gone through 31 of the treatments and it does appear to have slowed down the onset of symptoms, but that is my impression not any factual report. She has handled the infusions amazingly well with no real side effects other than a mild headache once or twice. I do notice her taking stair step-like progression of the symptoms, not being able to make a point or a decision or finish a sentence, poor thing. We go there dutifully every 2 weeks as it is the only thing we can do. It's very expensive as well but so far Medicare and insurance has covered the bulk of the cost. Mayo is just a great hospital experience with quality staff and premises. We are damned with the disease but blessed with being treated at Mayo.
Connect
We have had no experience with Leqembi, but it is something our son has mentioned for his dad, and he wishes we would look into it…so best wishes to you and I hope the side effects lessen going forward. “Meeting” others on Connect is such a great comfort!