Replies to Hi, I also had 3 cysts show up on an Octreotide Scan several years ago, However,…

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Pancreatic Cancer | Last Active: Mar 27, 2022 | Replies (65)

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@irvkay312

Hi,
I also had 3 cysts show up on an Octreotide Scan several years ago, However, in that I have Tuberous Sclerosis; that was not of major concern. Since the Tuberous Sclerosis often has cysts on the kidneys especially, since they are from the neuroendricine disease.

If yours are in the kidney, I would watch for Urological changes, as well as possible stages of Chronic Kidney Disease. Otherwise, most are benign and do little, since they are often outside of the kidney.

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Replies to "Hi, I also had 3 cysts show up on an Octreotide Scan several years ago, However,..."

Bonita | @bonitav | May 21, 2016

Hi Kay... thanks for your response. First, I do have one functioning kidney, but the one that isn't functioning does have a cyst. My kidney disease is Acute, not chronic, caused by a vascular problem that required a stent in my right renal artery.. left kidney could not be stented so it's not working. My nephrologist isn't concerned... for now. The pancreatic cyst is to be followed and I've gotten some info that helps me not to worry so much. My brother's death from pancreatic cancer has added extra concern.
Again, thanks for sharing your experience. I wish you the best! Bonnie

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