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Thanks for your comments.
I am on my 7th ENT. He is suggesting balloon inflation of Eustachian tubes. I will try it as it seems low risk with a fairly high success rate.
I also use Systane and Pataday for my eyes. I have seen Optometrist, Ophthalmologist and Retinologist about my eyes. They don’t find anything amiss, but my eyes seem foggy and dry all the time.
I use some overnight lozenges for my dry mouth, and I use Xlear spray for dry nasal passages. I have been tested three times for Sjogrens, and it is always negative.
I went to PT for eight weeks for Vestibular therapy, and it made no difference. I was fitted with a TMJ mouthpiece. It made no difference.
As you can tell it is not for lack of trying that I have had no answers or improvement.
I keep hoping at some point we’ll hit on something to give relief.
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I have MCTD, an overlap disease. I end up chasing the symptoms rather than the diagnosis.
I use the Systane ointment at night and a eyemask at night helps a lot. I have a cpap machine and so the eye mask doesn't really help. Xiidra was prescribed, but it really stings, so I use it at night along with another drop of Systane. Husband has Refresh. Foggy and dry eyes are also affected by general hydration--still lots of days my mind tells me I am sleepy due to the blurr.
The Oral B Dry Mouth is good for about 3-4 hours. But, I have the gum and hard candies in my purse. I brush 2X day with electric toothbrush: my teeth were cracking and gums were acting up until I started doing this.
TMJ stretches: https://www.youtube.com/watch?v=Vrz25x3qnTY Cool Pack or heat helps and I massage the cheeks to keep the salivary glands/eustachian tubes clear--lemon drops help keep them all functioning. If you are ever in severe pain, get to the PCP as infections are a horrid experience. Take care.