Just joined this group. I was diagnosed in January 2022 with Sjogren's/Sicca after undergoing a Sialoendoscopy to look at and flush the Parotid glands on the sides of my face which previously had been swelling up and were painful. That coupled with terribly dry mouth, eyes, nose, skin & privates, produced a diagnosis. My former Rheumatologist seemed knowledgeable about SS but then we retired & moved to an entirely new state. There are few Rheumatologists down here in coastal Texas that are acquainted with and regularly treat Sjogren's patients. I desperately need to find one that knows all about Sjogren's.

If not for taking my prescription PILOCARPINE three times daily, I would already be dead, having dehydrated from the inside out. For dryness I also use Biotene mouth wash & mouth rinse, Xylimelts, water thickener flavored with MIO at night to hydrate my throat & esophagus. I also drink about 13 cups of water per day. It's horrible but I am so grateful I don't have Rheumatoid Arthritis or other complications of this syndrome.