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← Return to Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
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Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
Post-COVID Recovery & COVID-19 | Last Active: Mar 15 10:56am | Replies (17)Comment receiving replies
Hi there...agree with you that, even here in NYC, where I also live, LC flies under the radar. My docs essentially blew off considering it as the cause of chronic symptoms since my second bout a year ago, including dizziness I never had before. Just made two appointments at the NYU Langone LC Clinic (neurology, rheumatology). They won't happen for a while, but what else is new? Have you had any experience there? Of all our hospitals, NYU is my top choice in every other way. Thanks! I join the collective prayers for good news and restored good health for us all.
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I am so sorry to hear you’re also subjected to feeling dismissed and unheard. I also have an appointment with NY Langone but that’s not until June. I was so desperate for some kind of help and answers, I was able to get an appointment with Montefiore LC Recovery in the Bronx in December. The doctor there I must admit was very kind and sympathetic towards my issues and concerns, and honest about unfortunately there isn’t a lot of knowledge right now on how to treat LC itself but to try and treat and manage the symptoms it’s causing. He also referred me to a support group for LC sufferers, which he actually joins once a month to answer questions and update us on any new information and trial studies. I’m still going to go to my appointment with NYU Langone in June.