Metastatic breast cancer: Anyone else?

Posted by rae3 @rae3, Oct 6, 2016

Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??

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@windyshores

@kerirutledge did you have an x-ray first or did your docs go right to MRI? I am sorry you are dealing with this. I had a grade 3 cancer in 2015 w/LVI. I don't react to every pain but have sought assessment of hip issue and get told to go to PCP for x-ray. Keep us posted on your progress!

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No x-rays. Straight to MRI. I go for another consult today. I'm really just impatient for the testing I need, the PET scan and biopsy. To deal with this, I need to know what I'm looking at. I'm only 52! I have 2 girls in college and I'm just not ready to be done!

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@kerirutledge

No x-rays. Straight to MRI. I go for another consult today. I'm really just impatient for the testing I need, the PET scan and biopsy. To deal with this, I need to know what I'm looking at. I'm only 52! I have 2 girls in college and I'm just not ready to be done!

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Keep us posted on those other tests! I get it about the kids. People talk about quality of life but I want quantity with my kids too. Hope this is early and that treatments are reassuring.

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Hello @kerirutledge ,
I am sorry that they have found the disease coming back. It looks like you have some experience from your early stage disease. They will probably do a biopsy to find the disease subtype (hormone status and HER2 status). It is a good idea to get a genetic and genomic test (liquid biopsy) to see if there's a specific therapy available. (Some drugs don't work well with certain mutations, and some drugs are specifically designed for people with certain mutations). After these tests, they will decide your therapy. Some people live many years and quite comfortably (few side effects) with the new drugs available. Stay strong and thank you for sharing.

Here's a site that may answer some of the questions you may have:
https://www.lbbc.org/your-journey/living-with-metastatic-breast-cancer

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