@batsam10
Your Gleason scores were same as mine. I was originally given a intermediate risk score based on the 3+4=7. However my Decipher test came back low risk and then my Mayo oncologist/radiologist lowered my risk to low risk and no need for hormone treatements.
Could of things: Do not be oververly concerned with side affects. In realtity the are usually minor and of little inconvenience. For some there is more of degree of side affects but most have minor. I had minor that did not need medications and were temporary.
Regarding your risk level. High suggest you have a Decipher test. This test uses the same biopsies taken to do the test and does not require additional biopsies. It is a genetic test and can give you and your provider a more definite diagnosis of risk level.
I would also asked for a PSMA and bone scan. These too will address any spread of cancer outside of prostrate which will great affect the type of treatment you get.
Did you provider set up Photon or Proton radiation treatments. Both have specific advantanges of reducing side affects with Proton being the latest method to reduce side affects and damage to healthy organs and tissues as it the radiation beam does not pass through body like Photon does. Proton also can use pencil beam which is a highly control beam to reduce side affects. It is also use with eye cancer and other cancers when trying to reduce damage to organs and tissues that surrond the cancer.
Bottom line: Do some research, asked opinons for others like MCC, AND get a second opinion on diagnosis and treatment options. AND regardless of who you use or treatments get the Decpipher test, PSMA, and bone scan.
Good luck and don't be afraid millions of us have gone through this will little side affects. Others will have them but that is life and no one is going to have the same outcomes. Then do what is best for you and your mental and physical health.
Thank you for the response and information. If you don’t mind my asking what treatment did you chose? You mentioned no need for hormone therapy, so I’m assuming you chose radiation. Unfortunately, I’m doing the research now and just trusted what the Dr’s have said. The literature provided to me by the Radiation Oncologist sounded pretty bad for someone with baseline bowel issues. I hope you are doing well.