← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease
DiscussionRare Cancer: Gynecologic Extramammary Paget's Disease
Gynecologic Cancers | Last Active: Oct 24 10:43am | Replies (76)Comment receiving replies
Replies to "Hi @worried123, that is so confusing when you get differing opinions from experts. I'm tagging @victoria15..."
Hi there!
I am responding. From what I have read, chemo is not offered for EMPD. However, things may be different if it is found in a lymph node. My EMPD was primary and non invasive. I was diagnosed December 13 having had it for 1 1/2 years that I know of. I had scouting punch biopsies done first. They came back all negative except the original site. I had a CT with contrast dye done on my chest, abdomen & pelvis. I had no underlying malignancies. I had already had a colonoscopy, pap, and mammography done along with blood tests—all negative. I was offered Moh’s. My dermatologist did 4 stages and reach all clear margins. He did a Xenograph Advancement flap and closed me up. I healed pretty quickly. He says there is 5% chance it could return which means a 95% chance it won’t. If it does, I think I would do the Moh’s again though I may consider the cream. I am glad it is over at least for now. I will see the dermatologist in June and will continue to follow up with him.