← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease

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@colleenyoung

Hi @worried123, that is so confusing when you get differing opinions from experts. I'm tagging @victoria15 @ameliae @chaka67 @pugpeople @catlazz @blueeyedkygirl50 @moffitt to make sure they saw your post and can share the treatments they had.

Worried123, have you decided to go ahead with chemo or immunotherapy? If yes, what regimen are you getting? How are you doing?

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Replies to "Hi @worried123, that is so confusing when you get differing opinions from experts. I'm tagging @victoria15..."

Hi there!
I am responding. From what I have read, chemo is not offered for EMPD. However, things may be different if it is found in a lymph node. My EMPD was primary and non invasive. I was diagnosed December 13 having had it for 1 1/2 years that I know of. I had scouting punch biopsies done first. They came back all negative except the original site. I had a CT with contrast dye done on my chest, abdomen & pelvis. I had no underlying malignancies. I had already had a colonoscopy, pap, and mammography done along with blood tests—all negative. I was offered Moh’s. My dermatologist did 4 stages and reach all clear margins. He did a Xenograph Advancement flap and closed me up. I healed pretty quickly. He says there is 5% chance it could return which means a 95% chance it won’t. If it does, I think I would do the Moh’s again though I may consider the cream. I am glad it is over at least for now. I will see the dermatologist in June and will continue to follow up with him.