Not yet, although I had a helpful conversation with the radiation oncologist last week. I am waiting for results of gene testing and a PETscan, and I hope to get a second opinion. I would love to hear what other people with PLCIS decided and why. Thanks!

I decided on a second mastectomy plus radiation. I talked to the radiation oncologist at the breast center associated with my hospital. He is extremely knowledgeable and approachable, and explained everything in great detail, answering all of my many questions (that I had typed out ahead of time). He emphasized that their equipment is state of the art, and I later found out from another doctor that he is internationally known. (We live in the San Francisco Bay area.) I feel lucky to have such a good doctor and such excellent facilities. Knowing all this, I thought I felt confident to go ahead with radiation therapy. I had been worried about it before.

It is true that it is a risk to go ahead without a mastectomy, but after analyzing all my concerns, I realized that they were all about the future, and what might happened 10 or 15 years down the road. I am 68. I decided to do what I wanted to do right now - I am still happily married to the love of my life, and I want to enjoy sex with two breasts (to be very frank). Also, in the future it is entirely possible that they will come up with new treatments that will be very effective. So I decided to go with what I want for now and not be so anxious about what might happen in the future. I know this decision might not be for everyone. I can be a bit of a (calculated) risk-taker. Some will prefer to just "get it over with" and not have to worry about all the follow-ups, which is very understandable. Hope this helps.