Hi, @mrt2024. Welcome to Mayo Connect where lots of us benefit from the experiences of others interested in or in need of medical information.
Your father and I have a lot in common. Three months ago, I had most of my colon removed after a colonoscopy detected tumors in my appendix and the top of my descending colon. A gastroenterologist did the diagnosis, then turned me over to good surgeons who practice at the University of VA hospital in Haymarket where the surgery was performed. In recovery, I moved to the VHC hospital in Arlington for a week and enjoyed the kind of medical care that Mayo Clinic spawns with its consulting program. All of that analysis and treatment worked, clearing the identified cancer and showing no malignancies in any of 20 lymph glands sampled in the surgery.
After that, an oncologist came aboard my medical team, and we agreed to avoid chemotherapy in favor of multiyear surveillance to be sure any new tumors are detected early down the road. First lab tests are clear of any evidence of cancer cells. I'll have three regular CT scans every year for at least 5 years in the event any tumors show up.
My medical team was drawn mainly from Kaiser Permanente medical services. The two hospitals are often the recourse for KP patients in my home area of Northern Virginia.
Let me know if I might provide answers to any questions I've prompted. Martin
Hi, @predictable Thank you for sharing your journey, Martin. Wishing you continued good health and strength on your road to recovery.
Actually, I stated his situation as stage 3 rectal cancer, but we haven't heard about anything from our colorectal surgeon who conducted the colonoscopy. We visited the surgeon after the colonoscopy and biopsy, and he mentioned the findings and asked us to do an MRI, CT scan, and blood test. We did all that was recommended. After that, nobody called us. After a while, someone called and asked if we have an oncologist. Of course, we don't have one. A few minutes later, the same person called and gave us a name and phone number to make an appointment, providing no further information. I asked if they had received the results. She said she believed they did. So, what is the result? "We will call you back once we review them," she said. It's been 4 days and they haven't called back. This coming week we have an appointment. Anyway, we called the given number to make an appointment. They asked for the reason. I said I don't even know why I am calling you or what an oncologist does, etc. We provided my father's information, but they could not make an appointment due to system issues. I logged in to the patient portal and saw the MRI and CT scan reports. I am not an expert to understand those clearly. They were stating "Impression: Mid to high rectal cancer, T3d N2, MRF+, EMVI present." To know nothing drives me crazy. I wanted to know. I searched on the Internet, I used AI to interpret it. I typed every detail into the ChatGPT chatbox, etc. This is why I said Stage 3. And AI even says findings increase the risk of metastasis. I know what I did, what I am doing is not good, but... Anyway, the next day we called the oncologist's office to ask again. The person on the phone said they received the documents and gave them to the oncologist's team, and they will call us to make an appointment either this Friday or Monday. Nobody has called us yet. It seems they are going to call us on Monday. I just lost my faith in the surgeon and their recommendation of an oncologist. We are still going to see them, but I want a better place for a second opinion. My father only knows his diagnosis is rectal cancer. I did not mention anything about what I saw on the reports because I know I may give a lot of wrong information. I am just trying to prepare him mentally for the whole process. I told him that he may receive chemotherapy and radiotherapy, or not.