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High risk surgery. Is it worth it?

Neuroendocrine Tumors (NETs) | Last Active: Mar 29 11:38pm | Replies (40)

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@ant12

I have been fasting now for a month. Not eating till 12pm each day. I have had improvements in my health and general well being.
I had chronic diarrhoea for months going sometimes 20 times a day. That has stopped and my movements are almost normal now.
I’ve lost 5 kilos in that time.
So fasting is great.
I don’t want to have the surgery, but feel if I get this one out I can use lanreotide to control any others that may develop.
Thank you for sharing your journey

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Replies to "I have been fasting now for a month. Not eating till 12pm each day. I have..."

That is great. I really believe in diet for control or help with control of carcinoids. I have found that what I eat and how much is something that directly affects our bowel movements. I had to battle the diarrhea thing too and had to learn by trial and error. Yesterday and this morning was perfect. Here is what I ate. One small cup of coffee with a little creamer. Three eggs with four pieces of whole grain bread made into two sandwiches with a bit of Miracle whip and that was breakfast. I had about fifteen potato chips (plain chips) as a small snack at about 2:00p.m. Nothing more until the evening when I had a meal of spaghetti with tomato sauce and mushrooms. I had ten Brussell sprouts and that was it for the day. I drank nothing except occasional sips of water. I don't recommend the chips at all but I felt I could get away with a few. Instead my normal thing is a bowel of colored peppers, baby tomatoes, halfa cucumber and a few sections of apple (all of which is basically water. I believe in colored peppers as being very helpful in nutrition. Three basic factors here---few calories, no soft drinks or fruit juices (I have not drunk anything except water and a cup of coffee for over nine years, there is little meat in my diet generally unless you count a few eggs and a bit of fish on occasion, but most of all a limit on my calories. I really believe it helps no matter what any doctor will say. I still think a lot of what you here from whoever, including myself, is speculation. Until Iam told that this is how people get carcinoids, I will keep an open mind. No one knows and so I go with what works for me as an individual. I still think a lot of this is basic biology on basic biological principles at the cellular level.