1. < Neuropathy

PN with lymph fluid leaking in both legs below the knee with severe pa

Posted by musicman @musicman, Mar 9 3:11pm

My husband has been to 3 local wound clinics, had been on different kinds of antibiotics, but none right now. He fell 2 stories on his right shoulder 30+ years ago causing a broken shoulder and damage to his spine, L4 L5 area. Had failed back surgery 7 years ago. They could not repair the pinched nerve. Slowly the feeling in his feet and legs have diminished but the pain is excruciating. Now, due to lack of movement he has developed lymphodema. The fluid coming out is non stop and I change the bandages everyday. The wound care doctor doesn't understand why he's in so much pain. He's been on oxycodone for the back pain for many years and recently have added Lyrica, which has helped. Lately, however, his pain is of the charts. I can't stand to see him cry day after day. There has to be something to lessen the pain. Thanks for any help you can offer.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Mar 9 5:12pm

Hello @musicman, Welcome to Connect. I know it has to be difficult for you watching your husband in pain and not being able to help lessen his pain. I have lymphedema and have to wear knee high compression socks but I don't have any open wounds or pain with my legs. Since you mentioned wounds and leaking fluid I thought this reference may offer some suggestions:
--- What are the treatment options for chronic wounds?: https://www.ncbi.nlm.nih.gov/books/NBK326436/

Are there open wounds on your husbands feet or legs that are leaking lymphatic fluid? Are you able to seek help or a second opinion at a teaching hospital or major health facility like Mayo Clinic?

REPLY
1 reply
musicman | @musicman | Mar 9 5:35pm
In reply to @johnbishop "Hello @musicman, Welcome to Connect. I know it has to be difficult for you watching your..." + (show)
@johnbishop

Hello @musicman, Welcome to Connect. I know it has to be difficult for you watching your husband in pain and not being able to help lessen his pain. I have lymphedema and have to wear knee high compression socks but I don't have any open wounds or pain with my legs. Since you mentioned wounds and leaking fluid I thought this reference may offer some suggestions:
--- What are the treatment options for chronic wounds?: https://www.ncbi.nlm.nih.gov/books/NBK326436/

Are there open wounds on your husbands feet or legs that are leaking lymphatic fluid? Are you able to seek help or a second opinion at a teaching hospital or major health facility like Mayo Clinic?

Jump to this post

Thank you! We need to get to a second opinion. We live in a rural area of Ohio with not many options for thus kind of care. The wound clinic in Fort Wayne wouldn't even see him. Yes there are many open wounds on both legs.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Mar 9 7:06pm
In reply to @musicman "Thank you! We need to get to a second opinion. We live in a rural area..." + (show)
@musicman

Thank you! We need to get to a second opinion. We live in a rural area of Ohio with not many options for thus kind of care. The wound clinic in Fort Wayne wouldn't even see him. Yes there are many open wounds on both legs.

Jump to this post

Not sure if this is helpful but here is a list of teaching hospitals in Ohio in case there is one closer to you - https://www.healthguideusa.org/teaching_hospitals_ohio.htm

REPLY
1 reply
musicman | @musicman | Mar 9 8:40pm
In reply to @johnbishop "Not sure if this is helpful but here is a list of teaching hospitals in Ohio..." + (show)
@johnbishop

Not sure if this is helpful but here is a list of teaching hospitals in Ohio in case there is one closer to you - https://www.healthguideusa.org/teaching_hospitals_ohio.htm

Jump to this post

You are a blessing! Thank you!

REPLY
Sophie46 | @sophie46 | Mar 10 12:06pm

I am wondering if your husband has Adhesive Arachnoiditis. This is a very painful disease. I have this condition from having a spinal fluid leak. It can be caused by many different treatments.

REPLY
1 reply
musicman | @musicman | Mar 10 1:41pm
In reply to @sophie46 "I am wondering if your husband has Adhesive Arachnoiditis. This is a very painful disease. I..." + (show)
@sophie46

I am wondering if your husband has Adhesive Arachnoiditis. This is a very painful disease. I have this condition from having a spinal fluid leak. It can be caused by many different treatments.

Jump to this post

I've not heard of that. Thank you

REPLY
Please sign in or register to post a reply.