Im sorry you’re going through this. The best thing you can do is fully educate yourself on this disease and possible treatments. Next is to consult with a net specialist. You can learn a ton about this disease and find a specialist near you at
https://www.carcinoid.org/for-patients/
There’s also a list of questions to ask at
https://www.cancer.net/cancer-types/neuroendocrine-tumors/questions-ask-health-care-team
There’s a very well known and respected specialist, Dr Liu at Rocky Mountain Mountain Cancer Center in Denver who (I believe) does out of state Telehealth consults if there isn’t a specialist near you.