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How Much Time Between Your Diagnosis to Your Start of Treatment?

Prostate Cancer | Last Active: Mar 22 4:47pm | Replies (20)
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@netherlandlad

I was told I needed Xtandi on January 9th. Nothing has happened yet. Today is March 9th. Can't get ahold of anyone to move this along. I am taking Lupron and have another shot scheduled on April 3rd. My oncology pharmacist said she would check on it. Nothing has happened. Am I missing something? Is anyone out there using this combination? My prostate was removed but my PSA doubled in 6 months.

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Replies to "I was told I needed Xtandi on January 9th. Nothing has happened yet. Today is March..."
Colleen Young, Connect Director | @colleenyoung | Mar 16 2:51pm

@netherlandlad, have you been able to reach your oncologist this past week?

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gently | @gently | Mar 22 8:45am

You might try Xtandi support https://www.xtandi.com/financial-support
Sometimes you get lost in the shuffle, and sometimes insurance appeals or other requests get sent to the wrong place. It isn't that much fun but you should kick up some dust. Call your oncologist's office every morning, until you get a response. If there is a patient portal use that in addition. Sometimes a fax will get a response when nothing else will.
The offices can flounder with these appeals and the challenges to denials can be time consuming, but you should be informed of exactly what the delay for and status of your prescription.

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