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@needanswers7

Do you have any other rheumatoid problems other than the hearing loss/tinnitus? My cell counts and inflammation are satisfactory and tests show no autoimmune problems. Sudden hearing loss, like you, and very loud tinnitus are my main problems. What meds did you use right after the prednisone and did it help? Did you have any bad side effects from the injections? I’m worried the needle will damage my hearing more. After the injections, did you go straight to Humira and is that all that you take now? Did I understand you correctly that you no longer need the hearing aids now that you are on Humira? Sorry for so many questions. I’ve tried prednisone 60 mg taper, methotrexate with no lasting improvement. I just started a diuretic and Allegra for 3 months to try to reduce fluid in inner ear. Avoiding salt, caffeine, alcohol, chocolate, sugar. No result yet. Continue to lose my hearing with constant loud tinnitus. I can’t hear through all of the tinnitus! ENT not sure if cochlear hydrops with Meniere's or AIED. All other tests are clear. This is so frustrating and scary.

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Replies to "Do you have any other rheumatoid problems other than the hearing loss/tinnitus? My cell counts and..."

In the blood analysis, did they performe the test of antibodies against a 68-kD protein (anticochlear antibodies)?
If, in addition to the symptoms of fluctuating hearing loss that evolves rapidly, tinnitus, vestibular symptoms (I, for example, do not have vertigo, only spiral dizziness that lasts a short time), that test comes out positive, the ENT could conclude that the disease is AIED. In my case, the rest of the immunological tests were all negative. Only the test of the cochlear antibodies was positive.