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Stiff Heart - diastolic heart failure

Heart & Blood Health | Last Active: Mar 3 10:16am | Replies (214)

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@annierae

Hi Teresa! Thank you! You know, I'm still not even sure that amyloidosis is what I have, since the tests for diagnosis were not done here (Cardiac MRI, PET scan and Heart Biopsy). However, if it's not, I'm sure they'll tell me and send me where I need to go. But if it is, and if it's familial, my kids will need to know so they can be prepared. Knowledge, to me, is power.

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Replies to "Hi Teresa! Thank you! You know, I'm still not even sure that amyloidosis is what I..."

Yes, so true, knowledge is power, @annierae. Getting information for future generations in your family is such a wonderful goal!

Hello @annierae

I was thinking about you and wondering if you have an appointment scheduled yet at Mayo's Cardiac Amyloid Clinic?