That's all pretty frightening. I didn't realize all the consequences of Prednisone. We're still fairly new to this. He's been on Prednisone since May 2023 but had tapered down to 12.5 mg from 30 mg for PMR. Then all hell broke loose when he developed GCA last month and he had three 1200 IV infusions of methylprednisolone. Now he's on 80 mg per day and has been for almost 2 weeks. With all this prednisone he's still losing weight. But he has lost that chipmunk cheek look he had about 3 weeks ago when his inflammation levels had skyrocketed. I hope you can get all your levels back on track and that you don't end up with diabetes. It sounds like you've been through a lot.

You're saying weight loss is common with untreated PMR/GCA and weight gain is common when these conditions are treated with Prednisone. Which worries me since he's had all this Prednisone for months. I can only think positive and hope for the best. He says the prednisone makes him feel hyper and he gets a bit shaky (hands.) He's thinking that's what is causing weight loss. I just want to get confirmation that nothing else is going on and I'm praying this week's labs will show a reduction in his inflammation levels. We've only dealt with PMR until very recently when he was diagnosed with GCA.

The crazy thing about all of this is my husband was so healthy for so many years and this came out of nowhere.