Oh my God, Bobby!! 🤗 What an absolute horror. Such a nightmare for you, your wife and family. Such an ordeal to be forced to deal with. I’m so sorry what you had to endure and still endure!

Wish you did not have pain and hope the full body brace is not for a very long time.

Hoping they are doing SOMETHING to aide your healing and pain and hope talking about it, if even a bit, vents some of the anger and dismay at this predicament.

I will say when pain is extreme, when I think how bad it gets and to know it could last for a more prolonged time, it makes me have dark thoughts. But then there are better days when it’s not as bad that gives me a little relief. That said, my hope has taken hits over the last three years.

As this nerve thing progresses, I need to have answers just so I can prepare myself mentally and emotionally to what is ahead. I hear ringing in my head, ‘take one moment at a time’. It’s the one thing that keeps my mind from running like a freight train into depression.

Still hopeful for straight answers even if it’s more testing. I want the best case and worst case scenario. Not to plod along at this rate.

Pain really affects us. It is I’ve found to be a lonely road, in my head. Until a person walks in the shoes, cant see it, can’t feel it, don’t experience it, so how could a person understand. But the good news support comes from different places. Namely here, people who understand and know pain well.

What I’ve done is drawn up a ‘pain related mind map’ to show a doctor. If he or she would like to understand ‘at a glance’ pain. I will include a picture of it. It may not do a thing, but in my head I think it could. Because pain for the most part is an invisible ‘ailment’.

It was therapeutic to draw this pain mind map. For each person has their own pain maps that run parallel or detour out, the thing remains, is how much it affects us, without talking a lot about those extensions is a shared condition. Where support is more often than not, just around the bend.

💜