It shouldn't be that way for GCA.
I was diagnosed with PMR about 15 years ago but all my doctors ask me about GCA related symptoms. I had temporal facial pain with electric shocks around my left eye (trigeminal neuralgia).
https://www.ninds.nih.gov/health-information/disorders/trigeminal-neuralgia
I went to the emergency room several times when the electricity wouldn't stop. My wife would have to go with me because I would be unable to speak.
I also would have frequent visual disturbances and some vision loss that wasn't permanent. My rheumatologist offers me a semi-apology for having to ask me about symptoms of GCA even now -- 15 years after being diagnosed with PMR. I just say that I understand why the questions are asked and respond by saying, "to my knowledge --I don't have GCA."
All I have to do is call my ophthalmologist and mention that uveitis might have recurred. The only question they ever ask me is "How soon can I come in to be seen?" Uveitis can cause permanent vision loss too. I'm usually seen within hours of calling to report my symptoms of uveitis.
https://www.mayoclinic.org/diseases-conditions/uveitis/symptoms-causes/syc-20378734
When my ophthalmologist does his exam for uveitis, he reassures me that he doesn't see signs of GCA. He says my optic nerve still looks healthy but the inflammation inside my eye is usually severe. Prednisone 60 mg is what I usually start with for every flare of uveitis.
Once I went to a rheumatology appointment with a red eye. My rheumatologist asked me if I knew how serious it could be. She called the ophthalmology department herself and sent me there to be seen.
Only once did I fear I would be blind in one eye in spite of 100 mg of prednisone. Now I see a "uveitis specialist" rather than a general ophthalmologist.
Thank you for your feedback. It sounds like the doctors you're seeing are a lot more attentive and knowledgable. This is why we're getting a second opinion later this month. We are very fortunate that we are able to get in to see the Chief of Rheumatology. I think they know we're upset and serious. Otherwise, I'm not sure we would have been able to get to see her. We'll see how it goes. All I know is I need to feel confident in his rheumatologist and at the moment, I don't. So it's time to look for a new one. If all goes well with the appointment later this month the Chief of Rheumatology can become his new rheumatologist. So far she's the one who did the most good for him when his doctor was out of the office. Aside from an emergency room doc.