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Pulmonologist versus Infectious Disease Dr

MAC & Bronchiectasis | Last Active: Mar 12 10:15am | Replies (65)

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@blm1007blm1007

Gerd.
There is a bit of confusion and therefore a big, do I or do I not have GERD or GORD.
The gastroenterologist locally in 2022 did the scope and said I needed to take a PPI for acid reflux. I decided not to take it at that time.
The gastroenterologist in NHJ 2023 who did the 24 hour probe study test through the nose with camera said I didn't have GERD or GORD after having done the test.
I do have a hiatal hernia.
So, for me I do the Wedge pillow with two other pillows to keep me up high and as well stay away, mostly, from all the foods they say not to eat. All this is the same one needs to do for GERD/GORD or hiatal hernia from what I have read. It is small, the hernia per NJH.
I am not giving up on finding the answer to the constant throat clearing and what I bring up and out. It could be heart, and I have an appointment this week with a cardiologist. I have seen more doctors in the last year and a half than I have seen all my 81 + 5 months of life and it all began due to the throat clearing and what I bringing up.
I have been very fortunate health wise most of my life....this however is one I can't apparently "beat." I don't feel like I'm choking with the substance in my throat...at times it is thick. I think the thickness of it depends upon how much water I took in that day. I am also starting slow with taking a small amout of liquid CVS guaifenesin in hopes of keeping it thin.
Waiting for the last sputum test sent to Tyler, TX mid February before starting the Biaxin and Myambutol and as well talking with, running it by, the pulmonologist in Tyler about the diagnosis of Lady Windermere Syndrome and the Meds suggested.
Hoping for the right answers and diagnosis....if it is possible. Thanks for your responses.

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Replies to "Gerd. There is a bit of confusion and therefore a big, do I or do I..."

Well God love you!! You have the right attitude, and you will persevere till you get the correct answer. I’m only 74 - just a baby. It seems the throat thing bothers you most. I’m no doctor but maybe all the things together ( hernia, GERD, BE, and MAC are the catylist). I sure hope you get an answer. I think not knowing the “why” is unnerving. The liquid CVS G syrup is excellent. My husband has been taking it for years. Perhaps that will make a difference. Praying for answers for you! We Lady Windermere’s need to stick together. 🙂 irene5

On the issue of GERD, I was told anyone, from time to time, can have symptoms of GERD but not have a diagnosis of GERD that shows up on the 24 hr PH test. Likely no need for PPI’s in that case, but Gaviscon (or other product) or using a wedge pillow could help. Also taking a PPI before having a meal that might trigger your symptoms can work too.