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Tired of the gaslighting

Autoimmune Diseases | Last Active: Apr 30 10:33pm | Replies (189)

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@krisjb1

Holy crow or cow or whatever expresses surprise and AWE. I know this post is a few months old, but since I am just seeing it now it is new to me. How much of what you have experienced has also been mine? Quite a bit. Here is a sample.I just saw a pain management dr this week. Brought my MRI's for my neck which is now at the herniated disc stage and told dr the only med that has helped my pain is Methadone. I have already doene the acupuncture, the physical theray, the chiropractic. I still have pain gauged at #10 for 5-10 days at a time that puts me in bed 24/7 -usually 2X a year. Because the pain is so severe I don't eat or drink and am unable to care for myself so need around the clock help bringing icepacks etc. That pain in my head, the doc said he can't help me with because it is not in his purview. It isn't in the neurologist's purview either. But, the pain doc does want to inject some steroids while I get radiation to guide him and a bit of dye put in my bloodstream too so he doesn't accidentally hit my spinal cord. Nope, I don't think I am doing that, thank you. So, I am going to die in pain because at age 77 I might become a Methadone junkie. It makes complete sense to me.

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Replies to "Holy crow or cow or whatever expresses surprise and AWE. I know this post is a..."

Maybe there’s something I don’t understand. The procedure you describe is well understood for severe Spinal Pain. The radiation is minimal and the dye isnt harmful. I had it deposited via a Bronchoscopy into the bottom corner of my lung so the doc could find the tumor when he made an incision from the outside. It exited via my urine which turned lovely shade of green. If your personal risk profile for the procedure exceeds your tolerance, then you of course have the freedom to refuse it.
I just don’t grasp your frustration. What do you want to happen that isn’t happening?